Friday, 4 January 2019

Mental Health Madness PT2

Continuing on from  Mental Health Madness PT1  having already had the hurdle of trying to see a GP, I decided as a writer to do what I believe many in desperate need won't do, and that's to fill in the Wellbeing  Centres online seven-page questionnaire to try and access the service? 

The question that shocked me the most was on the last page, it asked if I was thinking of committing Suicide and if so had I planned how I was going to do it? There was then a box where I'm asked to describe exactly HOW I would do it?  I have to admit there was a mixture of shock, anger and sarcastic thoughts buzzing through my head at this point.  

Once you've seen a question you can't unsee it and I think it's just human nature, curiosity and automatic reaction to do that theoretical thing, where your inner head Chimp goes "Oh okay, well I wouldn't commit suicide but if I did how WOULD I do it? 
I was tempted to write in the box "I'm thinking of shoving a stick of dynamite up my arse and wandering into the Wellness centre"   (Wouldn't have to wait 12 weeks to be seen then eh? )  
I didn't of course, it was left blank because I'm not suicidal but I find it quite horrific and unnecessary to ask such a question, not just at such an early stage of trying to access the service but to ask it at all?

For someone that wasn't suicidal could it not suddenly become an option when presented with this question and made to think about it in detail?  For those that ARE suicidal doesn't this just fuel those thoughts? 

In the main, and in my personal experience people that commit suicide don't usually talk about it, in fact as in my brothers case they often lie and tell others they wouldn't ever do that.  So someone who was genuinely thinking of taking their own life wouldn't fill the form in honestly anyway. Those that frequently talk about Suicide and have suicidal thoughts rarely go through with it, there's often a pattern of self-harm, or/and drink, drugs, generally self-destructive behaviour involved in their quest to find someone to save them, often from themselves due to some past or present situation, so all the question does is fuel that thought and behaviour pattern. 

Having submitted the form, two weeks later I received a letter......along with a  two-sided sliding scale questionnaire that I was expected to fill in (I'll be on Mastermind at this rate ). I refuse point blank to fill in these useless forms, it's just another block that serves no purpose. For anyone unfamiliar with a sliding scale form let me enlighten you. The first problem with these questionnaires is that they are "One Glove Fits All" based, they take nothing else into consideration.  So the conflict is the questions are looked at from a mental/psychological angle whereas someone like myself who has Scoliosis,  Osteoporosis, Myalgic Encephalomyelitis (M.E) & Fibromyalgia view them from a physical angle by which they are impossible to fill in due to the daily fluctuating symptoms. 

Trouble Concentrating on things such as reading the newspaper or watching TV?  Not at all?  Several days?  More than half the days?  Nearly every day? 

Another question: 

Choose from the scale  0-8 how much you would avoid the situations or objects below:
Social situations due to fear of being embarrassed or making a fool of myself? 
Certain situations because of fear of having panic attacks or other distressing symptoms such as loss of bladder, vomiting or dizzyness?  
Would Not Avoid It?  Slightly Avoid It? Definitely Avoid It?  Markedly Avoid It?  Always Avoid It?  
If looking at it from a physical illness angle the questions all intermate that illness is a choice?  There are many things I cannot do due to M.E & Fibromyalgia which are the ones that hinder me the most due to their symptoms, meaning avoidance of certain things is a result of physical illness. certainly not a choice.

"Can't you just fill it in anyway?" encouraged the lady that called a few weeks later as part of my initial assessment. After explaining yet again why  I refuse to fill in these forms, she agreed with everything I stated.....but then said it still needed to be filled as  "part of the process"

As an added annoyance I was spoken to in a tone that made me feel as though I'd  just pooped on the potty for the first time, and it was a  conversation littered with what felt like buzz words that staff have been told to slip in as often as possible      "Well done"  "You're being very brave" "Thank-you for sharing that"  Yadda Yadda!

 " Do you think we could we go through it together over the phone?" she continued, regarding the form.
"We Could, but it would be a lie because it's impossible to fill in honestly?" says I

"Let's try anyway?" she insisted

 I found myself suddenly regressed to a petulant child as I repeated, 8, 8, 8, 8,  Basically, I just gave the severest answer for each question. We both knew it was meaningless but she was happy because the form had been filled and she could tick a box. She then informed me that I would have to go through a sliding scale form with the Counsellor too and off we went back and forth into battle again.  She said she would have to speak to her manager and get back to me.

She got back a few days later to say they could offer me the CBT I'd requested for dealing with long-term chronic illness, but would I consider grief counselling after that? 
Huh?  I just wanted CBT for the whole kit and caboodle that's going on in my life, it all kinda comes as a package?

Apparently, it doesn't work like that, I can have CBT in terms of my long-term physical health conditions but they don't deal in grief so  I'd need to go back to my GP and see about being referred for grief counselling somewhere else or I might even be able to refer myself......again.
It's a weird ask of someone really isn't it, to separate their pains and emotions and departmentalise them so they can fit into the right box for convenience sake?  

The conversation ended with her telling me the counsellor would be in touch in 4 wks to introduce himself properly and then it would probably be a 12 wk wait? That was in September and I've heard nothing since and it will probably boil down to the age-old  "Slipped through the net" scenario that I've come to know so well over 29yrs, and that got me thinking, I've survived 29yrs without any real outside support or help  for any of my physical conditions, in fact if we're honest, like many I've faced completely the opposite, Ignorance, prejudice, negligence and downright cruelty. As for grief counselling? again, I've coped for three years without any help and I'll continue muddling through I'm sure. What has been made so evident by my experience of trying to access mental health services thus far is how little has changed.

While I'm still  angry  and devastated and a zillion other things that my brother took his own life I really don't blame him for not trying to access any help because it's an Awful, Clueless, Jobs-worthy Scripted Shambles and had I been someone that WAS suicidal I would've stuck my middle finger up  and jumped off the nearest bridge by  now.....and I wonder how many have ? 


The Wellbeing service is run by the NHS  and we all know how overstretched they are as far as funding and staff go?  but it isn't all about money...or lack of, it goes beyond that, the whole process is wrong, lengthy and unnecessary,  it's patronising and even before physically talking to someone you're  put off by the sites talk of   "expected out of session homework tasks"  and  "filling in of questionnaires to monitor symptoms and progress" I was just looking for a bit of help with my grief at the loss of both my siblings and also 29 yrs of living with M.E but there is no way on earth having experienced what  I have so far that I would take it any further even by chance they do eventually get in touch.

With the barbaric roll out of Universal credit, mental health problems are set to rise. In October Glasgow MSP Annie Wells a Tory Mental Health spokesperson admitted that it was failing societies most vulnerable.  And don't think this is just the usual politics, the misery and deaths as a result of UC are intentional, the Government are hellbent on slashing the welfare bill at any cost and that's why they are content to  keep lying, remain emotionless to what's happening &  shift the responsibility to individuals, groups and charities to pick up the pieces  just so long as they cut that bill.  We don't just have a mental health crisis on our hands, we have a humanitarian crisis on our hands. There is a serious ripple of discontent stirring throughout social media as various groups start to form and gather followers, with a call for action and I believe it won't be long until we see that action on our streets. This government need to start listening, for just as the people put them up there, the people can and will take them down again, the vulnerable are counting on us.  
                                     
                                                                 Til Next Time
                                                                  Stay Blessed
                                                               Back Before Elvis
                        


Monday, 31 December 2018

Resolution Time & Appreciation

Busy! Busy! Busy! Rush! Rush! Rush! from the moment we open our eyes in the morning our brain starts whirring or in my case spluttering and not making much sense until about 10am, thanks to an infusion of Coffee and as little human interaction as possible. 
Have you noticed we're a generation that is forever thinking & chattering away in our own head, what we've got to do today, whether we're good enough, always trying to stay one thought ahead, and always self-sabotaging like it's the whole point in being here?  When we're not doing that we have our face glued to a screen, be it the  (not so) Smart Phone, Computer, Netflix yadda yadda!...ah no, silly me, you wouldn't have noticed would you? 

We've become so disconnected from each other AND ourselves that we're becoming as automated as most of the UK's customer services, ya know... Press 1, Press 2,  Please state the reason why you're here after the tone? I'm sorry I didn't get that. Lets' try again.  Please state why you're here after the tone? 

Why ARE we here?  What I do know is, we're missing the point, we're so wrapped up in things that don't matter that we're ignoring the things that do, like time, time to appreciate everything we have, everything we are.  

The very simple act of waking each morning, opening our eyes, to see, to hear, is truly a blessing, many aren't afforded that privilege, and it is a privilege NOT a right,  and yet how many actually give it a thought? Instead we crawl out of bed and do things on automatic, wash, get dressed, clean teeth etc, all things that many people due to death, poor health or/and disability can't do. We take every second of our Life and doable things for granted. Have you ever stopped for a moment to consider what it would be like to wake up blind?  or deaf? or disabled and not be able to dress yourself, or even go to the toilet by yourself?  How bloody lucky for those of us given the ability to do these things and much more every day?

You can't buy time, time to appreciate the things that truly matter, time for family and friends & strangers even, those in need. It's free, it's there and yet we choose to put everything else that doesn't really matter first?  Taking time to appreciate time and all the things that actually make our daily life possible is I believe the point.  When our time is over,  having a great job, big house and flash car will mean nothing. People don't remember others by their material wealth, we're remembered for acts of kindness, for giving our time, for our ability to make others laugh, feel good, or feel loved. None of those things cost and yet it's what nourishes another's soul more than any amount of money ever could, and by giving of ourselves in this way we also nourish our own soul. 

They say the true meaning of Christmas has been lost, it should be a time of reflection, appreciation, coming together, sharing?  But why just Christmas? Shouldn't that be our daily goal?

In a nutshell, self-sabotaging serves no purpose whatsoever, none of it's true & it just wastes precious time, so focus on your abilities and remember the small things ARE the big things, the things that matter.  Regarding death, someone once said that we're all in a queue we just don't know where in the queue we are. So take that thought into 2019 with you, If you wake up in the morning it's cause for celebration,  appreciate the day even the poop things that happen, view it as a life lesson and not the end of the world because in the bigger picture it really isn't.  Take time to say what you mean and mean what you say, and say "I love you" more often and don't ever get too big to give or receive a hug.  I have come to learn the magnitude of  giving time and a hug to another, while a simple act, earlier this year someone who was considering suicide told me it  had made them feel that someone cared, made them feel they had worth and  plenty to still offer to the world &  had given them a reason  to stay.  Each and every one of us has these wonderful gifts inside of us that we can give to another, it would sure make the world a better place if we all used them, that might be asking a lot, but we can at least start with ourselves?

To family and friends real & virtual and those no longer in my life but have taught me lessons I thank you all, I have nothing but love and appreciation. 
                                              Happy New Year, Stay Blessed
                                                       Back Before Elvis x
                                    


Friday, 21 December 2018

Mental Health Madness PT 1

Many of the Mental health services in Hertfordshire are appallingly inadequate,  It's probably the same all over the country, but I prefer to stick to fact rather than assumption and as someone that lives in Watford Hertfordshire I know it to be true.

It 's not that it was any better in "The good ol days". I remember many years ago a young girl of 14  taking an overdose, after getting her to hospital to have her stomach pumped we were told it was a 6-8 wk wait before she could be assessed for appropriate treatment
/Counselling and then another few months wait before she could start that treatment/Counselling. In the meantime, if things got too bad she could "Ring the Samaritans"    You mean that organisation where it's like talking to a brick wall and where  they keep asking if you're thinking of taking your own life until it feels more like a suggestion than a question?  Yes, that organisation. 

Fast forward to 2018, I've had two friends that have been sectioned this year due to sudden mental health issues. Their families, frightened and in a state of shock themselves were given no support & little information and had to fight every step of the way, even getting hold of the visiting times turned into a drama. Meetings were arranged but when relatives turned up, the meeting had gone ahead without them.  Severely affected are placed in with moderately affected, my friends & their families witnessed daily fights and attacks, it was only when alarms went off that staff came otherwise they were rarely seen. When any issues were raised to staff or management it was met with hostility. This is not only unhelpful, but it adds to an already traumatic situation, I believe this environment is dangerous and detrimental to an individuals recovery, especially when the mental health issues are moderate.  Management & staff  should be working with Patients and their families and vice versa not battening down the hatches and preparing for battle.

We have all this mental health awareness going on, The Media, Social media, TV, Radio etc telling people to speak up and get help, but in many cases the help that's available isn't fit for purpose and individuals are often branded as trouble-makers when they try to raise issues. This isn't anything new, but it needs to stop so that vital changes can take place.  

Those of you who've followed my articles over the years in my Column at the Watford Observer and on social media will know that in 2015  I lost my own brother to suicide, ironically he had volunteered as  a Samaritan for 18 of his younger years, we'd had many discussions and disagreements over the often robotic emotionless way  they operate , but he was a grown man and I respected his choice.  Having lost my Sister to a rare Sarcoma just five months later, it's left me bereft & adrift ever since. 

In 2017 I reluctantly went to see my GP, I say "My GP"   but does anyone actually know who the hell their GP is these days?  And even if they do, what are the chances you can get to see them?  There was a time that a patient and GP built up trust over time, a relationship, and an extremely important one at that. When an individual goes to a GP whether it be with a physical or mental health issue it's tough enough to confide without finding yourself sat opposite a total random. I believe the breakdown of the GP/Patient relationship has had a huge negative impact on both parties. Doctors have always worked in a stressful environment. As a child we had a Dr Filose,  the kindest most patient man you could meet & he resembled Raymond Burr from TV Police Drama "Ironside" for those old enough to remember? Little did we know until after his sudden death that he was an alcoholic battling his own demons. In fact in the Herts Adult Mental Heath Stragedy 2016-2021, it states that between 2014/2015  9,105 GPs were known to have serious mental health issues. 


Having waited two weeks for an appointment to see whoever was available first,  I felt as though I'd entered and exited via a revolving door, feeling awkward and not sure how to start I  muttered that I was stressed, without any eye contact whatsoever she leant over her desk, grabbed a card, handed it to me and told me to look the website up online and refer myself and I could sit in a circle and share my feelings. Horrified by the suggestion of  "Sitting in a circle sharing my shit"  & telling her as such, she told me to check it out anyway,  "Is there anything else I can help you with today? No? okay, bye"
Fast forward to 2018 and I repeated the sequence again, revolving doors, random GP,  card, self-referral yadda yadda! and back out again, only this time I followed it up online. The first perplexed face I pulled was at having to fill in a seven-page online questionnaire. 

Really?  I may not know a lot, but through decades of research and personal experience of supporting friends, family & randoms with various mental health issues, I know that someone in mental distress is not going to sit there writing chapter and verse for seven bloody pages. 

While lack of funding is an obvious issue in many cases, it still doesn't excuse the blocks,  I'd like to know who comes up with all these blocks, evidently someone without a Scooby Doo because let's  face it they don't do anyone any favours and are just jobs-worthy blocks that serve no real purpose to either party apart from a lot of paperwork & making it extremely difficult and off-putting for vulnerable people to access the service, and what about those that already have the obstacle of learning disabilities?   Although there's the option of phoning and going through the questionnaire with someone, when feeling emotional who wants to have seven pages of questions fired at them?  And some quite shocking questions at that........ 

Out of writer curiosity & for research I DID fill in the seven page questionnaire, so Join me this weekend for  Mental Health Madness PT 2 where I'll continue to share my own experience at attempting to access counselling, those shocking questions,  and also some of the problems faced by self-funded services, you won't want to miss it. And if you have stories and comments of your own? Feel free to share them in comments below.
                                                                Stay Blessed
                                                            Back Before Elvis
                                   

Friday, 25 May 2018

Fat Letters....No Op?

I've recently been contacted by a number of rather upset patients that come under West Herts Hospitals NHS trust, who while waiting for their Op date for medical conditions have suddenly received a letter to basically inform them they are too fat and can't have the Op after all.  The Trust have seemingly rolled out a new policy with a total lack of communication between departments, meaning even those at the hospital that should know about it......didn't.

As a regular reader & follower of the Column I used to write at the Watford Obs, I know one of the patients involved and was shocked to say the least when she contacted me on this matter, because while like most of us she could do with losing a few pounds, which she readily admits herself,  she is not what you would describe as fat or obese.  


When I started getting contacted by other patients with exactly the same issue I felt it needed bringing to public attention so that others can be pre-warned and hopefully in the meantime the Trust can rectify this faux pas.  Most of the patients' stories were similar, that they'd seen their doctor, a consultant at the hospital and had their pre-op and at no stage had any concern been raised about their weight, they were just told they would be put on a waiting list for their Op date.


It's never easy waiting for an Op, there's the stress and anxiousness of anticipation and just wanting to get it over with, so when a letter dropped through  one of the patients letter box they assumed it was  a date and tore it open only to read that it had been decided their BMI was too high and the trust weren't going to fund the Op.  
"I sat and cried, I think it was because it came as such a shock,  I've been waiting for weeks for my Op date so this was the last thing I was expecting," she  told me.
Another patient told of how they'd "broken down" when they'd received the letter. "I rarely ever cry, but they were basically telling me I was fat and it made me feel like rubbish,  nobody had said anything to me about losing weight.  Thankfully my family were home with me at the time and gave me hugs and reassurance, but I'd hate to think of  someone vulnerable and on their own suddenly getting one of these letters out of the blue " 

And that's one of the main reasons I decided to take up the story. It's Mental Health Awareness month this month, I've studied & researched all types of mental illness over the years, and I've also counselled & supported many with mental health problems over the years, so I'm fully aware of just how fragile a human can be, it can take nothing to very little to push someone with mental health issues over the edge. Weight issues are a very sensitive subject and while sensitivity tends to be pointed towards women I believe men are just as self-conscious and insecure when it comes to their size and appearance and it shouldn't be taken lightly. 
The letters go on to say the patients have 4 months to lose weight otherwise they will be taken off the list. If they lose the weight within the time frame they have to go back to their doctors, who presumably will refer them back to the hospital again to undergo their Pre Op....again?  Some of the patients contacted the hospital, only to be told someone would have to call them back because nothing was known about this. The callbacks revealed that it was a new policy the Trust were rolling out, criteria for an Op was now much stricter because there is so much pressure on the NHS  and something should have been said to patients at the stage they saw the consultant ....... the only problem was, someone seemingly forget to tell the consultants ? 

Another patient said  "I may be a stone overweight, but I go to the gym, I'm extremely fit, don't smoke and don't drink and yet I can't have the Op? Does it mean someone that's 8 stone, drinks and smokes and doesn't exercise can have the Op?  If the Trust are changing criteria or the way they deal with it, surely patients should be made aware in advance? 

A lady, also just a stone overweight told me that due to the placing of a Cyst she was waiting to have removed, she'd been advised to also have a hysterectomy, but the letter she received says due to her BMI being too high, the trust will only fund the removal of the Cyst, not the hysterectomy? 
"How the hell can that make sense,"  she said angrily 

After listening to all the cases,  I can only conclude that while it's seemingly being rolled out as for the patients own health & safety, A  realist, some would say cynical me, can't help thinking it smacks of cost-cutting?  Remember, if the patient hasn't lost the weight to fit the criteria within 4 months they are knocked off the list?  And lets' face it losing weight isn't that easy, even for the die hards amongst us?  
And it all seems rather shambolic,  they basically tell one patient she's too fat to have the Op so she can only have half of it as they'll only fund part of it? .... Surely she's either too fat to have the Op or she's not? 

 Not being obese or overly fat has always been a sensible factor when it comes to Operations, nobody has a problem with that, least of all the patients that have got in contact with me, but it seems the goal posts have been moved without anybody being warned. What  is now classed as being "too fat"?  Under the new rules what is the BMI people now need to be to have their operations?  Shouldn't patients be told at the start? 

The way in which this has been rolled out and handled has quite frankly been atrocious and has caused a lot of upset to the unsuspecting patients waiting on their Op date letters, only to receive the "Too fat, No-op" letters instead. We all make mistakes and we are all aware of the pressure on the NHS, but I hope West Herts Trust will put this right?  Firstly by apologising to all those that have received one of these letters, and secondly to rethink how they go forward with this policy. 

If anyone at West Herts NHS trust would like to get in touch with me to comment, I'd be more than happy to publish. 

                                                                    Stay Blessed
                                                               Back Before Elvis
                                   
 

Friday, 11 May 2018

Don't Call The Doctor!

As some of you will know, I've had Myalgic Encephalomyelitis (M.E) for 28yrs, M.E is a chronic complex physical debilitating illness. I also have other stuff like Fibromyalgia, Osteoporosis, Scoliosis,  hunchback, yada yada...apart from that, as most would say " I'm fine ". 


On Sunday 22nd April  2018 I began having breathing problems, it's common with my conditions and impossible to pinpoint what causes what exactly. The muscular weakness seems to lead to inflammation and spasms where the back and chest feel like concrete and there's an inability to take a full breath and then due to the exhaustion it all becomes rather distressing. 

I'm usually able to ride this out 
but it became worse as the day went on and by the evening, with raging pins and needles shooting up my spine like fire and spreading throughout my body I asked my mother to call an ambulance. I was also at a bad level of M.E at this point, trouble with processing thoughts and words slurring.

When the medics arrived they seemed rather hacked off that I wasn't on my last gasp and I felt the urge to apologize for being conscious. As it was explained to them I had M.E, there were huffs, puffs, eye rolling and general irritation.

As my mother later said "They made me feel like sh*t"  
"Yes mother, welcome to the world of M.E Sufferers"




Travelling in the back of an ambulance is the last place you want to be when you have M.E, the suspension makes it feel like you're being thrown around in a tumble dryer,  add in the bright ceiling lights and you're on the highway to hell.
At the hospital, Pablo (not his real name) introduced himself as my support nurse and announced he needed to take some blood. He began  tapping here there and everywhere looking for an appropriate vein to stick his needle: 


Me: Well I just hope your good at taking blood Pablo?

Pablo: No, 

(Did my foggy  disorientated head hear right?) 


Me: Sorry Pablo, did you just say you were no good at taking blood? 

Pablo: Yes. 

At this point, he twists my wrist, pulls it downwards and says he's  going to take it from the side if that's okay with me? 


Me: Pablo, you can take it where you want, as long as you don't hur.......AHHHHHHHHHHHHHHHH! 


I can confirm Pablo is no good at taking blood.



This is followed by an ECG and a chest Xray, thankfully not by Pablo, but the porter that wheels the bed to various bays & rooms obviously thinks we're taking part in Robot Wars, and his determined to take out anything that gets in our way, CRASH!, BANG! WALLOP!  I'm laid on my back, with one hand gripping the metal sidebar with white knuckles and the other trying to cover sensitive eyes from the bright ceiling lights speeding passed quicker than a Virgin media broadband connection. 

All done, and back in the bay I can't help but notice I have pants older than the doctor that has just entered. She leans on the beds' sidebars, turns her head to one side and looks at me patronisingly before announcing that everything is clear, so what would I like her to do? 

Before I respond to that question, I'm trying to explain the reason for my slow thought process and slurred speech...but it's...er?...slow.....& slurred, She's nodding, but I'm not sure if it's in acknowledgement or she's just nodding off because she's not even looking at me. She asks if I might just be having a bad M.E day?  in which case, there's still nothing they can do for me. 

"JUST having a bad M.E day" ?

she continues to look perplexed, and shrugs as her eyes wander off around the ward again.

I realise as per these 28 yrs, when it comes to GP's & Hospitals I'm not going to get anywhere.  When you have M.E,  you're viewed in the same way a dog views a lamp post.  
As it's M.E awareness month  I would ask those of you blessed with good health to imagine the following over numerous decades: You're feeling ill so you turn to a doctor? The hospital? But instead of helping you they bully you & try to brainwash you into believing you have a mental illness until you actually start to believe you are going crazy?   An ignorant media then spread those lies and the public swallow it? You lose your job, your social life, family members, friends?  

While standing your ground that you are suffering from a physical illness, refusing to play along puts you at risk of being forcibly removed from your home and locked up in a psychiatric unit and denied any visits from family and friends? You're also labelled a time- waster and treated accordingly.  Society treats you with such prejudice and disdain you're frightened to leave the house? 

Imagine feeling as though you are living in the dark ages? The very people that are supposedly there to help you, treat you like a criminal, punish you? Force you to exercise until you collapse and die?  Give you addictive medication that damages your body & health further? Yes, Welcome to the world of M.E indeed. 

M.E sufferers have and continue to be treated appallingly. It would take a novel to explain just how bad and maybe that's something I will do? 

Just the other day another friend and fellow M.E sufferer, having waited  3yrs for an appointment to see a rheumatologist was told all her pain was in her soul because she was probably too nice? 

Even though M.E has been listed as a neurological disorder by the world health organisation since 1969, the ignorance and prejudice has been shocking &  in many cases continues. Thankfully now the public, in general, are a lot savvier and clued up to the realities of M.E but sadly the medical profession are very much behind.  With Charities like Invest In M.E Research progress is being made, but we can't afford to let up, future generations depend on it.

 Remember, it was only in the 80's epilepsy was finally accepted as a physical illness, up til then sufferers were often deemed possessed and with mental illness and permanently sectioned. I personally knew a lady whose daughter was a victim of those times,  her mother went to her death full of guilt. Before the term Menopausal symptoms, women were branded as crazy and hysterical? 

While I'm well aware the medical profession is very ABC textbook operated, it should be obvious by now that life isn't like that, but Lessons aren't being learnt. Just because a new illness comes along that can't be visibly seen or shows up anything in basic tests, it doesn't necessarily mean that it's psychologically based, we've seen proof of that decade after decade and yet the same lazy ass route is taken every time.  Enough is enough, surely it's time the profession changed mindset?
   
Back to Watford Hospital, As my neighbour & her son kindly went to get the car to take me home and I shuffled to the exit in my PJ's, the doctor called out: "If you feel ill or have trouble breathing, come back"  ...???????????????

Yes, I'll just leave that out there for you to ponder on? 


 If you'd like to show your support for Invest In M.E Research every penny no matter how small is appreciated. The charity is run entirely by Volunteers, so they take no wages, your money goes where it should go, making a difference. Thank you, 

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